In this edition of The Butterfly Effect, discover how your contributions make a difference. Your support funds Debra’s annual respite day, offering families a much-needed break and kids a chance to just be kids. These joyful moments are only possible because of you.
We’re thrilled to unveil a special announcement: Colin Farrell is taking on a massive challenge for Debra this October! We’ve been keeping this under wraps for months and can’t wait to share the excitement with you.
You’ll also learn about our relentless advocacy efforts. Our ambitious Pre-Budget submission to the government aims to secure better support for people with EB. Thanks to your support, we’re proud to introduce Dr. Jessica Gale, the newest EB consultant at St. James Hospital, ensuring that specialised care remains a priority.
We’ve achieved so much together in recent years. Your support is the heartbeat of our progress. As we receive no government funding, any additional donation today will help expand our family support, research, and advocacy efforts, directly benefiting those we exist to support.
Your generosity brings hope to everyone in Ireland affected by EB. Thank you for being a beacon of hope.
