EB stories - Debra Ireland

Stories from people impacted by EB

Sharing a personal story, may not always be easy. But it can be empowering. It can be cathartic.

It can be crucial in breaking the isolation felt when EB is not understood.

Stories unite us. They connect us. They educate us.

We are a platform to your story.


Share your experience of life impacted by EB, and we will tell Ireland and the world beyond its borders about epidermolysis bullosa. We will not stop until we compel everyone to care and inspire everyone to act. They help us, and they help others.

EB stories

Share your story

We need to tell the stories of everyone impacted by EB. This is at the heart of our work. By showing the truth about your experiences, passions and hopes, we can raise desperately-needed awareness.

But by showing what it’s really like and what’s needed to make society better and fairer for people with EB, we will bring people closer to our work.

Share your story