Join our upcoming EB Expert Panel - Debra Ireland

Join our upcoming EB Expert Panel Workshop

Saturday, 20th April 2024, 1pm (lunch) 2pm - 5pm (workshop)

Your perspective matters, whether you have EB yourself, are a family member of someone with EB or are bereaved by EB.

We'd love to see you there!

We are absolutely thrilled by the progress achieved

Your voice has had an incredible impact it has already had on our work and EB research.

We are on a mission to make this impact even more significant, and for that, we need more voices to join the conversation.

If you are planning to attend, please bring along a friend or family member who knows a little bit about EB too. Our panel thrives on diverse voices and experiences, and the more people we can bring to the discussion, the richer the experience and the greater the outcomes.

Your contribution can make a profound difference in our ongoing efforts to advance EB research, advocacy and support.