Because we know you care and like us, want everybody to know and understand the impacts of EB.
Over the weekend you will meet people impacted by EB, its challenges, difficulties and heartbreaks that come with EB. Their stories are real living truth about EB and the pain they endure. They are a testament to resiliency. No one should have to live in pain.
Together, we can compel everyone to care and move everyone to act.
As an organisation, we receive little or no government funding. This is why each year we know we need to raise €2 million to deliver on our ambitions around family support, advocacy, and research programmes.
With your support, we can make sure we are here to help in all kinds of everyday ways, to listen, support, empower and alleviate unimaginable pressures.