On September 17th, our memorial service brought families together to honour the memory of loved ones who bravely battled epidermolysis bullosa.
Together, we remembered the profound impact they had on our live and families planted snowdrops in their memory which they took with them.
“This memorial day matters so much to our families. It’s so important that we preserve this space for them to get together and remember loved ones. It was wonderful to have so many generations from the same families join us.” Deirdre, Family Support Manager.
Even though they may no longer be with us, their memory lives on in the love, support and unity of the EB community. May their memories be a source of strength and motivation as we strive for a world free from EB.
Thank you to Kilashee House Hotel and Villa Spa for hosting this beautiful service for us and to you, our supporters, for ensuring we can be there for families for as long as they need us.
If you have been bereaved by EB and are not already connected with Debra, please don’t hesitate to contact us.