We campaign to change policies that affect people’s lives so no one has to fight alone.
We want to make sure that the voices of people impacted by EB are heard by decision makers and will unite to make sure services for everyone with EB are prioritised at the highest level.
We will unite to make sure services for everyone with EB are prioritised at the highest level.
For the second year in a row, we are asking the Government to prioritise EB care.
By investing €810,000 in mental health support, outreach care, and home care for people living with EB, we can make an immediate, positive impact for the approximately 300 people living with EB in Ireland. This is less than 2 cups of coffee per person per day. Based on the average of people living with EB in Ireland (300), the investment we are seeking would cost €7.40 per person a day, less than the price of two cups of coffee.
We are asking the Minister for Health to meet with us to learn how this small ask can have a big impact.