Our 2024 pre-budget submission campaign - Debra Ireland

Our "Small ask, big impact" 2024 pre-budget submission campaign

For the second year in a row, we are asking the Government to prioritise EB care.

By investing €810,000 in mental health support, outreach care, and home care for people living with EB, we can make an immediate, positive impact for the approximately 300 people living with EB in Ireland.

We are asking the Minister for Health to meet with us to learn how this small ask can have a big impact.


1,800 messages – will you add yours asking the Minister for Health to prioritise EB?

Over 100 people across Ireland have supported our call for investment by sending written messages that we have now turned into a book in support of Debra, while 1,800 of you have sent messages to the Minister for Health online through Twitter and Facebook. A huge thanks to everyone who has supported our campaign by taking this action.

With just two clicks, you can support our campaign by asking the Minister for Health to meet with us.

Power is in the numbers

Together we can shine a spotlight on the desperate struggle many people living with EB face to get care and support and showcase how such a small action can have a big impact.

Tweet Minister Stephen Donnelly

How little are we asking for?

0.003% of the overall health budget

The investment we are asking for is far less than 1% of the 2023 health budget, which was €23.4 billion.

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Less than 2 cups of coffee per person per day

Based on the average of people living with EB in Ireland (300), the investment we are seeking would cost €7.40 per person a day, less than the price of two cups of coffee.

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It's an unseen illness. There are times you would love help but you can’t get it, and don’t feel you can ask for it.

Aoife, living with EB simplex

Our asks are simple

Read our full pre-budget submission

Many people living with EB are struggling to access vital services and supports, with people often having to fight relentlessly to get what they need. We are calling on Government to invest in additional acute and community supports that will meet the unique needs of people living with or caring for someone with EB.

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Our campaign lunch at Leinster House