It can be exhausting for people with a rare disease, such as EB, to constantly have to explain their condition to others. We want to increase knowledge of EB, especially amongst medical professionals and researchers, so if they meet someone with EB, they’ll have a better understanding of the condition.
Imagine having to constantly explain your condition to a medical practitioner. Because EB is rare, this can often be the case. This year, we worked with students both at UCD and Yugo to increase their knowledge of EB amongst a younger generation of medical students and researchers, so if they meet someone with a rare disease like EB when working in the community, they’ll have a better understanding of the condition.