Working in partnership - Debra Ireland

Working in partnership

We understand that power is in the numbers. This is why we are actively involved in a number of advocacy groups to partner, network and share learnings.

We are active members of DEBRA International, Rare Diseases Ireland, EURORDIS – Rare Diseases Europe, Disability Federation of Ireland, Care Alliance Ireland and IPPOSI. We also take part in different policy forums, including the Rare Disease Forum, Social Policy Network and the Health Research Charities Ireland (HRCI) Advocacy and Communications Committee.

We are uniting for change for everyone with skin as fragile as a butterfly wing.

Our campaigns