Personalised EB booklets for school - Debra Ireland

Personalised EB booklets for school

Starting school is a wonderful and exciting milestone for a child but sometimes, it can be a little challenging to explain EB to classmates, their parents, and teachers. To help aid this transition, we offer children starting primary school, their own personalised booklet. All you need to do is complete our application form below.

The booklet will show readers (especially little ones) what EB is, the challenges the child may face, how they want to be treated and of course, what a super friend they will be. Their character will be beautifully illustrated from a real photograph of them so it really will be their story.

Applications for September 2024 are now open.

Take a look at our sample booklet about Michael below.

Michael has Dystrophic EB. He loves painting and dinosaurs and is looking forward to starting school in September.

This is an example copy using fictionalised characters only. Booklets can be personalised for any child starting school. Download sample.

Other booklets we have published

 

 

I love my new book because it's all about me and my special skin, and my mummy and nanny are in it too.

Darcee (5), EB simplex

Your own personalised booklet

How are the booklets personalised?

The booklets are personalised in two ways: content and illustration.

They include a character named after your child.  This character has EB, and we follow them as they tell us more about what that means. The character will be beautifully illustrated from a photograph of your child, making it look just like them.

Depending on your child’s type of EB, the narratives follow a template created by the Debra support team. This addresses challenges commonly faced by children starting school, such as explaining EB and dealing with people’s perceptions.

To make the stories even more special, we include some fun facts about your child such as their family life, their pet’s name and their hobbies. This information is collected from you during the application process.

On the cover, you’ll see your child’s character, and their name will be in the title.

What information do I need to share?

The illustrator will need 2 or 3 clear photos of your child which you can send to us during the application process. At least one photo should be a close-up photo and have your child is facing the camera.

We will also need some information on your child’s preferences, likes and hobbies.

I would like a booklet, but I do not want it personalised. Is that possible?

Yes, of course. We have a generic booklet with a fictionalised character. You can order this version of the book for your child’s class instead.

Can I order a booklet for my child in an older class?

The booklets are written for a young reader (age 4 to 7) and designed for a child starting junior or senior infants. If your child is in an older class, please contact the support team and we can see where we can help.

When and how do I receive the booklets?

We will send the booklets to you by post at least a month before your child’s school start date. This will have a booklet for each child in the class and some extra copies for teachers and you.

If I have more questions, who do I ask?

If you have any questions regarding the booklets or starting school, please contact the support team on:

Email: familysupport@debra.ie

Phone: 086 068 4722 or 01 412 6924

Some of our stories

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All our support services are free, confidential, and tailored to your individual needs. Just complete our simple registration process.

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