Starting school is a wonderful and exciting milestone for a child but sometimes, it can be a little challenging to explain EB to classmates, their parents, and teachers. To help aid this transition, we offer children starting primary school, their own personalised booklet. All you need to do is complete our application form below.
The booklet will show readers (especially little ones) what EB is, the challenges the child may face, how they want to be treated and of course, what a super friend they will be. Their character will be beautifully illustrated from a real photograph of them so it really will be their story.
Applications for September 2024 are now open.
Michael has Dystrophic EB. He loves painting and dinosaurs and is looking forward to starting school in September.
This is an example copy using fictionalised characters only. Booklets can be personalised for any child starting school. Download sample.
Darcee (5), EB simplex
The booklets are personalised in two ways: content and illustration.
They include a character named after your child. This character has EB, and we follow them as they tell us more about what that means. The character will be beautifully illustrated from a photograph of your child, making it look just like them.
Depending on your child’s type of EB, the narratives follow a template created by the Debra support team. This addresses challenges commonly faced by children starting school, such as explaining EB and dealing with people’s perceptions.
To make the stories even more special, we include some fun facts about your child such as their family life, their pet’s name and their hobbies. This information is collected from you during the application process.
On the cover, you’ll see your child’s character, and their name will be in the title.
The illustrator will need 2 or 3 clear photos of your child which you can send to us during the application process. At least one photo should be a close-up photo and have your child is facing the camera.
We will also need some information on your child’s preferences, likes and hobbies.
Yes, of course. We have a generic booklet with a fictionalised character. You can order this version of the book for your child’s class instead.
The booklets are written for a young reader (age 4 to 7) and designed for a child starting junior or senior infants. If your child is in an older class, please contact the support team and we can see where we can help.
We will send the booklets to you by post at least a month before your child’s school start date. This will have a booklet for each child in the class and some extra copies for teachers and you.
“The book has helped Bobby tell his story of his life with EB through the eyes of a child,” said Bobby’s mum, Garce Clifford.“His classmates now know why he wears bandages at school and why he has to be extra careful in the classroom.
In her own personalised illustrated book called Darcee's Story, she explains how she is just like any other little girl who loves drawing and stories. And even though she sometimes wears bandages, the booklet lets her new friends know that her condition is not contagious and doesn't stop her playing games with them.
The Debra family support team worked with the school for two years to prepare them for Maria. They created information booklets for Maria's principal, teachers, classmates and their parents as well as a very special, personalised book which was given to Maria's classmates so they can get to know Maria and learn about EB.
All our support services are free, confidential, and tailored to your individual needs. Just complete our simple registration process.