There are different types of EB, but they all share the main symptom of having skin as fragile as a butterfly wing. Skin that blisters and tears from minor friction or trauma.
The list of complications and secondary illnesses can be long and requires multiple interventions from a range of medical specialists. EB affects all genders and racial and ethnic groups equally.
There is no treatment or cure, but researchers are making tremendous strides in developing therapies. The current standard of care is supportive, which includes daily wound care, pain management, and protective bandaging.