- About EB
- EB support
- EB research
- Get involved
- Our campaigns
- Who we are
We’ve come a long way since we were founded in 1988. Every year, we move nearer to closing the gap between what families living with epidermolysis bullosa (EB) need and what they receive. Last year was an exceptional year. It was the first year of our new strategy and with the pressure on to break new ground the team delivered on their targets. This only has meaning if it reflects the needs of the families living with EB.
Everyone diagnosed with EB in Ireland must get the best possible support at the right time, every time, with a clear care pathway. Anything less is a failure. And we won’t stop until this happens. All our projects, all our efforts combined will bring significant change. Just like the butterfly effect. That’s what we are all about.
The ability to respond to a changing society and the vital needs those impacted by EB is absolutely critical to all of us in Debra.
This report – which describes our first year working towards our new strategy – sets out how we are delivering on our promises.
Whatever the future holds, we’ll be ready.
