Our strategy for 2022-2025 - Debra Ireland

Our strategy for 2022-2025

We will keep improving life for everyone living with EB in Ireland – between now and 2025, and long into the future.

Our seven strategic objectives reflect the three areas where progress must keep growing – EB services, advocacy, and research – and the four areas of our organisation we must strengthen to achieve our ambitions – support for our people, fundraising, communications, and impact measurement.

Welcome to a new chapter for Debra

Our strategy outlines how we will achieve the greatest possible impact for people with EB and their families between 2022 and 2025.

We’ve come a long way since we were founded in 1988. Back then, a group of determined parents came together with one goal: to improve life for everyone affected by EB. They wanted to make sure the best medical, psychological and community care was always available – just as we do today.

Jump forward to today and our work now encompasses advocacy, research and a huge range of support for patients, families and carers. Our support team criss-crosses the country, visiting patients at home and providing grants to help families cope with the many challenges of EB. All this supported by an incredible community of donors. But while we have achieved so much together, we still have so much to do.

Care for people living with EB must keep improving, with more customised support and a greater focus on EB’s emotional impact. Research must continue to hunt for answers that can transform support and deliver treatments now. Everyone diagnosed with EB in Ireland must get the best possible support at the right time, every time.

Our key working areas


EB support

Improve care for people living with EB, their families and carers


Campaigns and advocacy

Advocate for families living with EB to ensure they receive the right services and supports at the right time.



Build a strong sustainable funding platform that supports the long-term viability of Debra.



Demonstrate that our activities result in significantly improved quality of life for people living with EB.



Invest in research that contributes to solutions to improve the quality of life for those living with EB.



Be a great place to work, to volunteer and to collaborate with.



Implement a streamlined, consistent approach to communication, with increased awareness of EB and Debra's work.

Our strategy for 2022-2025