Work for us - Debra Ireland

Work for us

We are here to be a positive force for all those living with EB and all those whose lives have been impacted by EB. To help in all kinds of everyday ways, to listen, support, empower and alleviate unimaginable pressures.

We are here to lobby those in the halls of power. To command attention, demand and drive research and ensure imperative progress is made.

Open vacancies

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Family Support Officer

Reporting to: Head of Family Support

Type of Contract: Full time, 37.5 hours per week (5 days a week). There will be a requirement for occasional “out of hours” work. (Toil Policy)

Location: Debra’s office is based at Butterfly Cottage, 8 Clanwilliam Terrace, Dublin 2. Hybrid working available after probationary period (max. 2 days WFH a week).

Travel: There may be an occasional need to travel to families living with EB or peer events as part of the role.

The post of Family Support Officer is an integral part of the family support team, helping to provide support to families living with EB.

Main Duties and Responsibilities

Administrative

  • Lead administrative function for the service.
  • Manage phone and email queries for the family support service.
  • Manage all correspondence to people with EB/families via post, email, text.
  • Manage and process monthly invoices and Debra support grants.
  • Checking and submitting invoices, grant payments, expense claims etc to Finance for payment.
  • Prepare reports for management and external stakeholders.
  • Ensure accurate monitoring and reporting of service metrics and evaluation.
  • Develop, maintain, and improve policies and procedures as needed for the support team.
  • Maintain the CRM system for the support team.

Events/project management/development

  • Project manage events for the EB community throughout the year. This would also involve attending events out of regular office hours as required. ( TOIL policy in place)
  • Co-facilitate peer support groups.
  • Co-manage and facilitate Debra’s lived experience advisory panel workshops throughout the year.
  • Co-develop/design digital and print information and resources for the EB community (information sheets, leaflets, website, emails)
  • Provide content for the website, blogs and social media in conjunction with the communications team.

EB support

  • Provide phone support and information to individuals with EB and their families on queries around Debra grants, events, practical supports.
  • Provide practical support to people with EB/families in accessing national and community services and entitlements i.e., government grants, welfare, equipment, respite, education, counselling, social work, bereavement supports.
  • Provide information and support to professionals in health services, social services, local authority, community services, schools, etc.
  • Raise awareness and advocate on behalf of individuals with EB and their families on key issues such as housing needs, social inclusion, education, and employment.

Other

  • Collaborate with other EB organisations and Debra’s worldwide.
  • Assist other teams within Debra on various projects such as fundraising, communications, national advocacy, and EB research.
  • Attend regular training and conferences to educate and upskill in areas of EB, chronic illness, psychosocial needs, resources and supports, mental health, bereavement, etc.
  • Suitable candidate will be Garda Vetted.

 

Person Specification

Essential

  • Experience of working in an officer support role or similar.
  • Strong interpersonal skills and the ability to engage users, carers, and staff in other agencies.
  • A self-starter who can embrace both working on their own initiative and as a team player.
  • Conscientious with exceptional attention to detail.
  • Administrative skills with strong computer skills.
  • Must have a clean full driving licence.

Desirable

  • Database experience training would be an advantage.
  • Experience or knowledge of working with people with a physical disability.
  • Experience of working in the charity sector.
  • Experience in social care or HR or equivalent.

Benefits

  • Annual leave of 20 days.
  • Five discretionary leave days: Good Friday, Christmas Eve, working days between Christmas and New Year.
  • Employer-matched Pension Scheme up to 6%, following 6-month probationary period.
  • Employee Assistance Programme.
  • Opportunity for flexible/hybrid working.
  • Bike to Work Scheme.

Applications

Please email your CV and accompanying cover letter outlining your suitability for the role to info@debra.ie by 5pm on Monday, 27th May 2024, with the subject line as follows: First Name Last Name – Family Support Officer. Informal queries to familysupport@debra.ie. The position is subject to Garda clearance and reference check. Candidates must be legally entitled to work in Ireland at the time of application. Debra is an equal opportunities employer. Management reserves the right to amend or change this job description as required.

Senior Individual Giving Officer

Reporting to:
Head of Strategic Communications and Supporter Engagement

Type of Contract:
Full Time, Permanent, 37.5 hours per week.

Location:
Office-based. Flexible working is facilitated and embraced after passing probation and in a limited capacity and as per business needs.
Candidates must be resident in Ireland.
Debra’s office is based at Butterfly Cottage, 8 Clanwilliam Terrace, Dublin 2

About Debra
We are a national charity dedicated to transforming the lives of people living with epidermolysis bullosa (EB), caring for someone with EB, or bereaved by EB, through care, research and advocacy.

EB Is a painful and Incurable skin condition that makes people’s skin as fragile as the wings of a butterfly. Even gentle contact can cause devastating wounds.

We are a person-led charity, with an ambitious and passionate team, who care deeply about the people living with EB and families we work on behalf of. We actively live our core values of Togetherness, Person-Centredness, Passion, Boldness, Integrity, with people at the heart of everything we do.

About the role
The Senior Individual Giving Officer is a new role, responsible for ensuring the successful delivery of donor-centred campaigns.

You’ll implement direct marketing campaigns and communications, using a variety of different channels and propositions, to recruit and welcome new IG donors.

You have a passion for recruiting new donors through digital channels and are keen to work with Debra’s Senior Digital Lead In the development and evaluation of digital marketing campaigns.

This role Is responsible for managing the daily activities of the Individual Giving (IG) team, which Includes one other talented fundraiser. This presents an exciting opportunity for a highly motivated, experienced, and creative, fundraising person.

All your work will help grow our supporter base and increase unrestricted income so the Debra can campaign for change, fund ground-breaking research, and provide vital support and information to people living with EB in Ireland.

Main duties and responsibilities

Fundraising implementation and campaign delivery

  • Execute, manage and evaluate approved Individual Giving direct marketing campaigns across on and offline channels including digital, print, face to face and telemarketing. This Includes cash appeals and Regular Giving recruitment, conversion, and upgrade.
  • Working with the Individual Giving Executive, project manage and administrate all aspects of the DM campaign delivery process, ensuring that all campaigns are managed effectively, efficiently and delivered on time and within budget.
  • Liaise with suppliers at all stages to deliver campaigns (including creative, media and fundraising agencies, design, print and production teams) by communicating and managing campaign requirements.
  • Liaise and brief, as appropriate, key internal stakeholders to ensure the effective implementation of campaigns at an operational level.
  • Support the Head of Strategic Communications and Supporter Engagement with the development and implementation of a Regular Giving programme, ensuring excellent donor care and identifying for opportunities acquisition, upgrade and reactivation campaigns.
  • Support and contribute to the wider objectives of the IG, Legacy, In Memory and Supporter Care strands of our work.

Digital marketing

  • Working with our Senior Digital Lead, support with the delivery digital fundraising campaigns, including but not limited to Facebook Birthday and In Memory Fundraisers, Regular giving activation campaigns, etc.
  • Conduct donor research, for example using customer questionnaires and focus groups.
  • Support the Senior Digital Lead in tracking marketing performance and return on investment from IG-related campaigns.

Monitor and report on performance

  • Monitor and provide cost and income information on individual campaigns.
  • Ensure deadlines are met and learning from test activity applied.
  • Continuously assess and evaluate the performance of each campaign.
  • Support the Head of Strategic Communications and Supporter Engagement to set and report on strategic objectives and KPIs for the IG programme.
  • Proactively engage in donor behaviour analysis and development.

Supporter care and donor experience

  • Ensure high-quality stewardship is in place, including streamlined welcome journey, newsletter, surveys, gratitude communications, and ongoing donor journey development.
  • Deliver an exceptional supporter experience across all communications and fundraising activity.
  • Ensure supporter records and consents are kept up to date at all times.
  • Ensure that all DM materials support Debra’s evolving brand and follow agreed brand guidelines.

Cross-team collaboration

  • Build and develop strong working relationships with key internal teams.
  • Keep up to date with key Debra’s projects and developments and use relevant projects and personal stories within the programme.

Person specification

  • Minimum two years’ experience in an individual giving fundraising role, direct marketing, or similar.
  • Experience in direct marketing fundraising, with demonstrated expertise in direct mail, digital fundraising and acquisition campaigns.
  • Demonstrated experience developing and implementing effective multi-audience, donor-centred supporter journeys.
  • Proven experience of fundraising innovation.
  • Experience in managing suppliers and agencies.
  • Experience in database management, data extraction and segmentation. Knowledge of RE NXT an advantage.
  • Clear and established programme management experience, with proven ability to manage multiple projects, prioritise time and resources and thrive in a fast-paced, dynamic working environment.
  • Fluency in written and spoken English.

Leadership and person requirements

  • Demonstrates leadership with empathy, trust, positivity, and ambition.
  • Excellent communication and interpersonal skills, with proven experience building relationships with diverse stakeholder groups, and building cohesive cross-functional relationships.
  • Demonstrated flexibility, resiliency, and emotional agility, with a high level of self-awareness.
  • Proven problem-solving and process improvement abilities.
  • Strong empathetic nature, with a genuine passion and care for the EB community, and Debra’s network.

Benefits

  • 20 days annual leave
  • Additional 5 leave days: Good Friday, Christmas Eve, working days between Christmas-New Year
  • Generous paid Sick Leave entitlement
  • Employer matched Pension Scheme up to 6%, following 6-month probationary period
  • Employee Assistance Programme
  • Bike to Work Scheme
  • Opportunity for flexible/hybrid working

Applications
Please email your CV and accompanying cover letter outlining your suitability for the role to Alejandra.livschitz@debra.ie by 5pm on May 24th (Friday).

Please ensure to include the following title in the subject line of your email ‘Application for Senior Individual Giving Officer.

The position is subject to Garda clearance and reference check. Candidates must be legally entitled to work in Ireland at the time of application. Debra is an equal opportunities employer. Management reserves the right to amend or change this job description as required.

 

Campaigns and Advocacy Officer

Reporting to: Head of Advocacy, Research and Policy

Type of Contract: Full time or part time, Dublin based.

Salary: €35,000 – €40,000 pro rata, depending on experience

Location: Debra’s office is based at Butterfly Cottage, 8 Clanwilliam Terrace, Dublin 2. Flexible hybrid working.

Debra is in the middle of implementing an ambitious three-year advocacy plan as part of its organisational strategy. This advocacy plan focuses on developing our capacity as an advocacy organisation, ensuring the voice of people living with or caring for someone with EB is engaged and amplified across advocacy messages, implementing a series of campaigns and projects to achieve our policy priorities, and developing a network of political EB champions.

A member of the Advocacy, Research and Policy team, the Campaigns and Advocacy Officer will be involved in running all of Debra’s advocacy campaigns. This presents an exciting opportunity for a highly motivated advocacy professional to make a meaningful impact for those affected by EB in Ireland.

Main Duties and Responsibilities

  • Facilitate development of all Debra advocacy campaigns and work with the Advocacy, Research and Policy team on campaigns from start to finish, including evaluation. Such campaigns may include an annual pre-budget submission campaign, Election 2025 campaign and a campaign on access to medicines.
  • Communicate advocacy campaigns and successes to key stakeholders, including people impacted by EB.
  • Work closely with the family support team to ensure advocacy campaigns reflect the needs of people living with or caring for someone with EB.
  • Work with the Advocacy, Research and Policy team in commissioning and overseeing evidence generation to support access to better services and treatments for those living with EB.
  • Work closely with the communications team to develop campaign material and collateral and drive media and digital engagement.
  • Develop and maintain a diverse network of political and policy contacts and champions.
  • Contribute to national advocacy forums.
  • Engage with Debra International and other groups at an international level.
  • Ensure adherence to the Regulation of Lobbying Act 2015 and make required returns.
  • Carry out other roles or duties as are within the scope, spirit and purpose of the post, as requested.

Person Specification

  • A minimum of 2 years’ experience in a related advocacy / campaigning field.
  • Degree level qualification in a related field.
  • Experience in developing advocacy campaigns through stakeholder engagement.
  • Strong knowledge of the Irish political environment, with a distinct advantage if this is in the area of health or disability.
  • A clear ability to communicate concisely and directly in an accessible manner via a range of platforms and to varied audiences.
  • Exceptional project management and computer skills, with excellent attention to detail.
  • Flexibility to occasionally travel and work outside standard hours.
  • Fluency in written and spoken English.

Personal Attributes

  • Personable, with excellent communication skills and an ability to build relationships and work with professionals at all levels.
  • Self-motivated, highly capable of working independently and with a strong work ethic.
  • Disciplined, organised and thorough.
  • Strong empathetic nature, with a genuine passion and care for people impacted by EB.

Benefits

  • Annual leave of 20 days.
  • Five discretionary leave days: Good Friday, Christmas Eve, working days between Christmas and New Year.
  • Employer-matched Pension Scheme up to 6%, following 6-month probationary period.
  • Employee Assistance Programme.
  • Bike to Work Scheme.
  • Opportunity for flexible/hybrid working.

Applications

Please email your CV and accompanying cover letter outlining your suitability for the role to info@debra.ie by 5 pm on Friday the 19th of April 2024, with the subject line as follows: First Name Last Name – Campaigns and Advocacy Officer. Informal queries to advocacy@debra.ie.

The position is subject to Garda clearance and reference check. Candidates must be legally entitled to work in Ireland at the time of application. Debra is an equal opportunities employer. Management reserves the right to amend or change this job description as required.

Research Officer

Reporting to: Head of Advocacy, Research and Policy
Type of Contract:  Part-time (4 day week)/ Full-time (5 day week), Dublin based.
Salary:  €36,000 pro rata
Location:  Debra’s office is based at Butterfly Cottage, 8 Clanwilliam Terrace, Dublin 2. Flexible hybrid working.

Debra is a national charity established in 1988 to provide support and drive research into treatments for those living with the rare skin condition, Epidermolysis Bullosa (EB). EB is an extremely painful skin-blistering condition, which leaves the skin as fragile as the wings of a butterfly.

We are a person-led charity, with an ambitious and passionate team, who care deeply about the people we work with. We actively live our core values of Togetherness, Person-Centredness, Passion, Boldness and Integrity, with people at the heart of everything we do.

Reporting to the Head of Advocacy, Research and Policy, the key elements of this role are to manage all aspects of research communication to the EB community of families, researchers and other stakeholders, manage the process for Patient and Public Involvement (PPI) in research, and support the Head of Advocacy, Research and Policy in all other aspects of research. The successful candidate will work as part of a passionate, supportive, patient-centred team. This job description acts as a guide to the role of Research Officer. The role may change to meet the changing requirements of the organisation at any time, after discussion with the post holder.

Main Duties and Responsibilities

  • Manage patient and public involvement (PPI) for research and advocacy including organising and facilitating PPI workshops, meetings with researchers, PPI training and maintaining PPI engagement within the charity.
  • Produce accessible content on all aspects of EB research for a non-scientific audience.
  • Communicate across all stakeholder groups including, national and international EB researchers, healthcare professionals, and other Debras.
  • Stay abreast of national and international research in the field.
  • Manage and maintain content for the research section of the Debra website and create regular content for Debra’s ‘X’ account.
  • Oversee research funding schemes, projects and application support.
  • Support the coordination of Debra-led research and advocacy studies.
  • Conduct qualitative and quantitative data collection, as well as literature reviews for internal research studies.
  • Produce research reports, including PPI workshop reports and an annual research report following Debra brand guidelines.
  • Contribute to Debra’s research strategy.
  • Support the development and maintenance of standard operating procedures and policies related to research.
  • Contribute to national and international research forums and policy development.
  • Support the research manager on all tasks relating to research and research advocacy.

 

Person Specification

Essential

  • Degree level qualification (minimum).
  • Good knowledge of the health research environment.
  • Experience in digital communications and regular user of social media.
  • Excellent verbal and written skills and the ability to make complex topics accessible.
  • Exceptional project management and computer skills, with excellent attention to detail.
  • Flexibility to occasionally travel and work outside standard hours.
  • Fluency in written and spoken English.

 

Desirable

  • Experience working in the charity sector.
  • Experience in managing and facilitating groups and meetings.
  • Experience of PPI.

 

Personal Attributes

  • Enthusiasm for the overall vision of Debra.
  • Passionate about PPI and developing meaningful PPI relationships.
  • Personable, with excellent communication skills and an ability to build relationships and work with professionals at all levels.
  • Self-motivated, highly capable of working independently and with a strong work ethic.
  • Disciplined, organised and thorough.
  • Strong empathetic nature, with a genuine passion and care for people impacted by EB.

 

Benefits

  • Annual leave of 20 days.
  • Five discretionary leave days: Good Friday, Christmas Eve, working days between Christmas and New Year.
  • Employer-matched Pension Scheme up to 6%, following 6-month probationary period.
  • Employee Assistance Programme.
  • Opportunity for flexible/hybrid working.
  • Bike to Work Scheme.

 

Applications

Please email your CV and accompanying cover letter outlining your suitability for the role to info@debra.ie by 5pm on Friday, 10th May 2024, with the subject line as follows: First Name Last Name – Research Officer. Informal queries to research@debra.ie.

The position is subject to Garda clearance and reference check. Candidates must be legally entitled to work in Ireland at the time of application. Debra is an equal opportunities employer. Management reserves the right to amend or change this job description as required.

 

What's in it for you?

Flexible working

We believe in work-life balance. We offer flexible working and/or hybrid opportunities.

Wellbeing

We offer an Employee Assistance Programme (EAP).

Holiday and leave

We offer a generous annual leave allowance.

Family friendly

We understand people are managing work around other commitments. We offer generous carer and parental leave, and family friendly policies.

Training and development

We want to help our staff learn and grow.

Financial security

We offer competitive salaries and a pension scheme.

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