EB support - Debra Ireland

How can we help you

Our services and support are free, confidential, and tailored to your needs. We are here to help everyone impacted by EB in all 32 counties across Ireland.

We understand EB. We know how difficult this journey can be and that the needs you may have are very particular to you and your situation. We can help in all kinds of everyday ways, to listen to you, support you, and alleviate unimaginable pressures.

What can we help you with?

Services provided by our EB Support Team cover a wide range. Our services include:

  • Advocating on your behalf and for services, both locally and nationally.
  • Providing grants and financial support for things like respite, special equipment, and counselling.
  • Meeting face-to-face for emotional and practical support in all 32 counties across Ireland.
  • Organising events so you can connect with other people impacted by EB.
  • Finding and implementing practical work arounds for gaps in services and resources.
  • Signposting to key resources and information.

Our EB Support Team

Deirdre Callis

Head of Family Support

Eve O'Donnell

Family Support Worker

Kate Gibney

Family Support Officer

Debra makes a huge difference in my life. They’re your advocate. Instead of fighting an uphill battle, you’re finally winning a little bit.

Seamus - EB simplex

Financial support

Understanding that EB can have a huge financial impact on you and your family, we offer a range of financial supports that you can access, no matter what your financial situation may be.

All our grants are available to residents in the Republic of Ireland and are subject to funding and approval.

Respite and wellness grant - Applications now closed

Living with EB can sometimes take over and leave little time for you and your well-being. Our annual Respite and Wellness Grant offers each home the opportunity to get that all-important breathing space.

This grant can go towards a holiday, a great day out or any recreational activity that may improve your well-being and your family’s well-being.

Hospitalisation grant

Our hospitalisation grant provides financial assistance during a hospital stay for EB treatment, helping to alleviate the additional expenses that may arise.

Eligibility for the grant extends to anyone who has been admitted to hospital for EB treatment for a minimum of two nights, as well as parents whose child has been admitted.

This weekly grant can go towards various costs, such as food, travel, activities to keep busy, nearby accommodation for family or parents, and more.

Special circumstances grant

The Special Circumstances Grants are provided to rectify or address an immediate problem for a family or individual affected by EB following an assessment by a medical professional or our team.

Each application request is dealt with in confidence and may be subject to medical recommendation and the availability of funds.

Psychological support grant

We understand that living with EB can bring significant emotional and social challenges, and that professional counselling can be hugely helpful for some. If you would like to access this type of support, we can provide you with funding to engage in counselling or therapy.

As EB not only affects those diagnosed with the condition, we offer our psychological support grant to all members of the family

Sibling appreciation grant (every two years) - Applications now closed

Siblings play a key role in the lives of people with EB and we think it is very important to recognise and thank them for their help, support and care for their sister or brother with EB over the years. Every two years, we open up our Sibling Appreciation Grant where any person with EB can nominate their under 18’s sibling to receive a gift voucher from Debra.

Applications now closed

Christmas vouchers (opens in October) - Applications now closed

We understand Christmas can be an expensive time of year. That is why we like to offer all our households the option to apply for a One-4-All voucher to help relieve some pressure or to just treat yourself and your family to something nice.

Applications open in October.

Register with us

All our support services are free, confidential, and tailored to your individual needs. Just complete our simple registration process.

Our support and impact over the last year


emotional visits


support calls


advocacy calls and meetings made on behalf of people impacted by EB


grant applications